It's Not Yet Dark by Simon Fitzmaurice

"Death. On my shoulder. In my head. In the garden . At my door of my office. In every glance with my wife. My new companion : the end of my life."

"Hope is not about looking for a cure to a disease. Hope is a way of living. We often think we are entitled to a long and fruitful Coca Cola life. But life is a privilege, not a right. I feel privileged to be alive. That's hope. " 

This book takes you in the journey of this young man  from being a happy , being in love , good things happening in life, in job to a sudden diagnosis of ALS and you go through his journey with him . You can feel his frustration,his helplessness, and his fear . For me, the most inspiring thing about his journey was , his fight for life . It is an heartbreaking yet at the same time extraordinary book of fight for life, love , and family .